Comprehensive Elder Law Services

ALZHEIMER’S ASSOCIATION TOWN HALL MEETING

| Dec 8, 2020 | DEMENTIA |

I wanted to report on a few things that I heard at last night’s town hall meeting. This meeting provided an opportunity for people affected by Alzheimer’s disease to make statements that will influence the National Alzheimer’s Project Act, or NAPA. This act was signed into law last January, and creates a coordinated national plan to address Alzheimer’s research, clinical care, institutional-, home- and community-based programs and outcomes.

Here are a few of the things that struck me:

  • There were lots of people in their 40s and 50s who have been diagnosed with early Alzheimer’s, as well as their family members.
  • This group with an early diagnosis spoke very movingly about their struggle just to get diagnosed.
  • This group also expressed a lot of dissatisfaction with doctors in general for the lack of information and support provided.
  • There were many caregivers present, and they all talked about the burden of being caregivers.
  • I had heard this statistic before, but it still knocks me over–40% of caregivers will die before the carereceiver, a direct result of the burden of caregiving
These are just a few of the HUGE policy issues related to Alzheimer’s disease that will have to be addressed. A full 50% of people age 85 and older will have dementia, and this age group is the fastest growing age group in the United States right now.
If you want to share your experience with this disease, or offer ideas that could affect policy, you can share input through the Alzheimer’s Association.